COVID-19 is called a “novel” coronavirus because it is a relatively new germ. We don’t know a lot about it, so things change quickly. And it’s unfolding in different ways and at different rates across the country. That’s why it’s important to stay in touch concerning local policies and resources. Here are materials we have created for you, or gathered from credible sources, to guide you in providing optimal physical and emotional support to your older loved one.
Quarterly newsletters for families:
Emergency Medical Document Kit
These documents are helpful for creating a packet that gives health care providers an immediate snapshot of your loved one’s unique health picture. If they do need to go to the hospital or work with other care providers, having this up-to-date information at the ready will make it more likely they can deliver the thorough care your loved one needs.
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- Current medication list
- List of doctors
- Medical history
- Locate the advance directive
- Locate the MOLST (Massachusetts Medical Orders for Life-Sustaining Treatment) if one has been completed with the doctor.
Our favorite links
Here are important online resources, especially local agencies, that we trust and think you will find useful:
Massachusetts and local health departments:
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Prevention and caring strategies
Those who have done some planning and made arrangements ahead of time fare far better should the worst happen, than those who have not. Not only is an ounce of prevention worth a very big pound of cure, but in the distress of bad news, should it happen, it’s nice to have all the supplies you need at the ready and a plan for what you will do. Clear thinking is not at its strongest when we’re dealing with something as scary as an active case of COVID-19.
Here are strategies to help you ahead of time:
- Current mask guidelines – The virus changes over time, which means we need to adapt. Stay up-to-date on the latest guidelines from the Centers for Disease Control (CDC) regarding the most effective mask strategies.
- Cleaning and disinfecting – CDC infographic
- Connecting with doctors. Ask how to handle up-coming appointments, especially those for monitoring or treating chronic conditions. Ask about signs that a problem is developing and what you should do. Find out about telehealth options.
- Stocking up. Shortages may occur, and even online delivery services are having later than usual shipping dates. Help your loved one stock up on the following:
- Medications. The recommendation is to have a 90-day supply. Doctors and pharmacies are making it very easy to get 90 day’s worth. They understand the value of stocking up.
- Groceries. Try to have several weeks’ supply on hand.
- Medical supplies (hearing aid batteries, ostomy supplies, oxygen, etc.) Confirm any changed delivery patterns due to the pandemic.
- Getting prepared in case of illness
- Supplies list for the home and sick room
- Planning steps for patients and families – Prepare to Care in conjunction with the National Patient Advocate Foundation. Emphasis is on those who live in a single family home or apartment. Includes planning for medications, money and bills, pets, choosing a medical decision-maker, and what to bring to the hospital if things get serious.
- Checklist for Older Adults – CDC. Emphasis is on those who live in long-term care facilities (retirement communities, assisted living, continuing care retirement communities…). Includes getting ready in case you get COVID, if there is an outbreak in your community, advice for administrators and staff (useful for families to know what questions to ask), and advice for families of residents.
Caring for someone who is sick
What if you, the primary caregiver, gets sick?
Clearly you must take care of yourself (see the 10 steps for managing at home), but you also need to have a plan in place for others to step in for a few weeks and manage the things you currently do for your loved one. An Aging Life Care Manager can help with this. Give us a call at 339-298-8566.
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- Start by making a list of all the things you do and who might be able to take over in your stead:
- Fill pill boxes and order prescription refills
- Grocery shopping and other errands
- Monitor and order medical supplies
- Monitor and help to manage symptoms of chronic conditions (daily blood pressure and weight check, insulin testing for diabetics). Knowing when to call the doctor
- Pay bills and manage money
- Provide transportation to the doctor
- Work with the doctors and special therapists (physical therapy, speech therapy), home health or hospice nurses.
- Coordinate with outside services (home care, oxygen, meals on wheels, gardeners)
- Help with cooking and cleaning
- Assist with bathing, grooming, dressing, eating, toileting.
- Write instructions for things that are especially complicated. Concentrate only on those things that truly need to be done a particular way (e.g., a medical procedure, making a telehealth appointment). This is an extraordinary time, so allow leeway for things to be done differently from the way you might prefer. If there is not a long-lasting consequence to a deviation in method, that’s okay. The important part is that the task is accomplished rather than forgotten.
- Pick someone to coordinate all the helpers. It’s a job to orchestrate all the helpers and be sure everyone is coming through with their parts. Who would be best for this? Give them a call and ask if they can step in. Explain your list and answer questions. (You might also want to pick an alternate in case your first choice is also down with the coronavirus.)
Advance care planning
Perhaps your loved one has already prepared an advance directive and named a medical decision-maker. Great! Of course we all hope none of that will be necessary, but just in case, find the document and review it. There may be things that need updating: contact information for decision-makers, or perhaps a change in who is making decisions.
Have your loved one talk with the medical decision-maker about desires should things get serious. (We have some discussion tips and information below that is specifically related to COVID-19). These are sensitive topics. As Aging Life Care Managers, we can help facilitate this conversation.
And if the person you care for has not yet completed an advanced directive and named a decision-maker, now is an excellent time to get all of that in place. Let us help. Give us a call at 339-298-8566.
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Public health data and research
For those who want to stay on top of the latest data and breaking developments—or even contribute to scientific understanding of the pandemic—here are important credible resources:
Johns Hopkins Coronavirus Resource Center – Includes data about tests conducted; confirmed cases; and total deaths. All are displayed on a world map by country, a U.S. map by county (updated daily), as well as tracking of trending data displayed by animated maps.
Center for Disease Control – Includes number of U.S. cases confirmed; mortality rates; hospitalization rates and outcomes; and hospital capacity data.
National Institutes of Health – Information on latest studies concerning vaccines, testing, etc.
Stanford University Family Caregiver Study – Share your experience of caring for a loved one during the pandemic. The person you care for does not need to have COVID. This anonymous questionnaire is designed simply to help understand the issues family caregivers face in these unusual times. Your answers may contribute to the development of helpful programs.
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Weighing risks for the unvaccinated
Life is a series of trade-offs. Calculated risks.
In terms of risks, it is the unvaccinated who are getting infected and are ending up in the hospital, and even dying. (Those few vaccinated individuals who do get COVID do not often come down with an infection serious enough to warrant hospitalization.) The recommended federal safety precautions for the unvaccinated remain as they have been—masks, social distancing, vaccination, hand hygiene, avoiding crowds, and seeking well-ventilated venues.
As of July 26, 2021, the CDC specifically recommends that if you are unvaccinated you should:
1. Wear a mask
Wearing a mask over your nose and mouth is required on planes, buses, trains, and other forms of public transportation traveling into, within, or out of the United States and while indoors at U.S. transportation hubs such as airports and stations. Travelers are not required to wear a mask in outdoor areas of a conveyance (like on open deck areas of a ferry or the uncovered top deck of a bus).
2. Stay 6 feet away from others
- Inside your home: Avoid close contact with people who are sick.
- If possible, maintain 6 feet between the person who is sick and other household members.
- Outside your home: Put 6 feet of distance between yourself and people who don’t live in your household.
3. Get Vaccinated
- Authorized COVID-19 vaccines can help protect you from COVID-19.
- You should get a COVID-19 vaccine when it is available to you.
- Once you are fully vaccinated, you may be able to start doing some things that you had stopped doing because of the pandemic.
4. Avoid crowds and poorly ventilated spaces
- Being in crowds like in restaurants, bars, fitness centers, or movie theaters puts you at higher risk for COVID-19.
- Avoid indoor spaces that do not offer fresh air from the outdoors as much as possible.
- If indoors, bring in fresh air by opening windows and doors, if possible.
5. Wash your hands often
- Wash your hands often with soap and water for at least 20 seconds especially after you have been in a public place, or after blowing your nose, coughing, or sneezing.
- It’s especially important to wash:
- Before eating or preparing food
- Before touching your face
- After using the restroom
- After leaving a public place
- After blowing your nose, coughing, or sneezing
- After handling your mask
- After changing a diaper
- After caring for someone sick
- After touching animals or pets
- If soap and water are not readily available, use a hand sanitizer that contains at least 60% alcohol. Cover all surfaces of your hands and rub them together until they feel dry.
- Avoid touching your eyes, nose, and mouth with unwashed hands.
6. Cover coughs and sneezes
- If you are wearing a mask: You can cough or sneeze into your mask. Put on a new, clean mask as soon as possible and wash your hands.
- If you are not wearing a mask:
- Always cover your mouth and nose with a tissue when you cough or sneeze, or use the inside of your elbow and do not spit.
- Throw used tissues in the trash.
- Immediately wash your hands with soap and water for at least 20 seconds. If soap and water are not readily available, clean your hands with a hand sanitizer that contains at least 60% alcohol.
7. Clean and disinfect
- Clean high touch surfaces daily. This includes tables, doorknobs, light switches, countertops, handles, desks, phones, keyboards, toilets, faucets, and sinks.
- If someone is sick or has tested positive for COVID-19, disinfect frequently touched surfaces. Use a household disinfectant product from EPA’s List N: Disinfectants for Coronavirus (COVID-19)external icon according to manufacturer’s labeled directions.
- If surfaces are dirty, clean them using detergent or soap and water prior to disinfection.
8. Monitor your health daily
- Be alert for symptoms. Watch for fever, cough, shortness of breath, or other symptoms of COVID-19.
- Take your temperature if symptoms develop.
- Don’t take your temperature within 30 minutes of exercising or after taking medications that could lower your temperature, like acetaminophen.
- Follow CDC guidance if symptoms develop.
Who is at risk of a serious bout with COVID?
By far and away it is the unvaccinated who are being hospitalized, and dying, of COVID. Getting vaccinated is the best insurance against the virus. This is especially true of those who are high-risk. According to the CDC, in addition to advanced age, high-risk conditions include the following:
- Heart, lung, and kidney conditions
- A compromised immune system due to an organ transplant, medications, or autoimmune disease
How to know if those around you are vaccinated
There is no verification system, so if you are in a public place and worried—for yourself or a loved one—you can’t assume that lack of a mask means a person is vaccinated. Weigh the risks as you have been these past months and make individual decisions based on the doctor’s recommendations and your own assessment of what feels safe, or safe enough.
Local rules prevail
Keep abreast of local infection rates and the recommendations of local health departments. Decisions by state and county health departments will be more attune to the severity of the pandemic where your loved one lives.
Be aware also that individual businesses may choose to be more cautious. For the safety of everyone—their employees and customers—local businesses have the right to require everyone wear a mask in their setting, vaccinated or not.
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"I'm vaccinated! What can I do?"
According to the Centers for Disease Control (CDC) as of July 27, 2021, if you’ve been fully vaccinated*:
- You can resume activities that you did prior to the pandemic.
- To reduce the risk of being infected with the Delta variant and possibly spreading it to others, wear a mask indoors in public if you are in an area of substantial or high transmission.
- You might choose to wear a mask regardless of the level of transmission
- if you have a weakened immune system (people on medications that reduce immune response—cancer treatments, autoimmune diseases, transplant patients—or people with immune-compromised conditions, for example, HIV/AIDs), or
- if, because of your age or an underlying medical condition, you are at increased risk for severe disease, or
- if a member of your household has a weakened immune system, is at increased risk for severe disease, or is unvaccinated.
* “Fully vaccinated” means two weeks past the final shot (shot No. 2 of Moderna or Pfizer, or shot No. 1 of Johnson & Johnson).
Local laws, rules, and regulations can be more strict if there is a hot spot in your area. Check with your local health department for guidance. Plus, individual businesses have the right to maintain mask mandates to protect employees or customers who may not be vaccinated.
Masks are still required in indoor public settings where vulnerable or unvaccinated people might be present and not have a choice about leaving the premises:
- health care settings
- trains, planes, buses, other public transport
If you feel sick
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Even if you’ve been vaccinated, get tested, stay home, and revert to precautions for the unvaccinated, at least until a test confirms that you are COVID-free.